Will iConquerMS Kids & Teens share my health information?

Yes, the health information you contribute to iConquerMS™ Kids & Teens will be shared in a de-identified manner to enable research. Qualified researchers will be invited to request health information from iConquerMS™ Kids & Teens for the purpose of conducting research studies. The iConquerMS™ Research Committee will oversee the approval process for these requests. In other cases, qualified researchers will be asked to use iConquerMS™ health information to conduct research studies that arise from questions submitted by iConquerMS™ participants. This process will also be overseen by the iConquerMS™ Research Committee.

In addition, statistics and summary information based on all of the participants' health information pooled together will be shared with iConquerMS™ Kids & Teens participants and others to show, for example, what types of people are participating and how the participant base is growing over time.