WALTHAM, Mass., May 30, 2018 /PRNewswire-USNewswire/ -- The iConquerMS™ People-Powered Research Network, managed by Accelerated Cure Project, and the Italian MS Society PROMOPRO-MS database have announced a collaboration on a project to explore the feasibility of standardizing and harmonizing patient-reported outcome (PRO) measures between the two initiatives. Both organizations have substantial experience in collecting PROs for MS research and healthcare.
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Oct 25, 2016, 08:00 ET
WALTHAM, Mass., Oct. 25, 2016 /PRNewswire-USNewswire/ -- A team led by the Accelerated Cure Project for Multiple Sclerosis (ACP) has been approved for a Eugene Washington PCORI Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI) to support development of the Multiple Sclerosis (MS) Minority Research Engagement Partnership Network, a collaboration designed to identify and address disparities and increase participation by underrepresented communities in MS medical research.
REAL MS™ Will Explore Causes and Factors that Affect Progression and Treatment Outcomes
WALTHAM, MA, September 12, 2016 – iConquerMS™ (www.iConquerMS.org), a research initiative of the Accelerated Cure Project for Multiple Sclerosis, today launches REAL MS™, a prospective longitudinal study of multiple sclerosis intended to answer important questions about the heterogeneity of the experience of MS across the population of people living with the disease and identify ways to personalize clinical care by identifying factors that affect progression and treatment outcomes. REAL MS™ (Research Engagement About Life with Multiple Sclerosis) will encompass a diverse population of thousands of individuals living with MS, who will participate by answering online questionnaires about their disease experience and by providing biosamples for molecular analysis.
WALTHAM, MA, July 28, 2015 – The Accelerated Cure Project for Multiple Sclerosis has been approved for a three-year $1.3 million funding award by the Patient-Centered Outcomes Research Initiative (PCORI) for ongoing development of iConquerMS™. iConquerMS™ is a nationwide initiative by and for individuals living with multiple sclerosis who recognize the power of their health data and insights, and want to harness that power to fuel research; and is part of PCORnet, the National Patient- Centered Clinical Research Network.
Big Data approach for answering key questions
WALTHAM, MA, February 3, 2015 – The Accelerated Cure Project for Multiple Sclerosis today launches iConquerMS™, the nationwide initiative by and for individuals living with multiple sclerosis who recognize the power of their health data and insights and want to harness that power to fuel research. The initiative's portal www.iConquerMS.org enables all people living with MS to play an active role in research, empowering them to securely submit their health data, propose topics of research that are most important to them, influence the research that is carried out by the initiative, and become truly informed about the research process and specific studies.
BOSTON, Dec. 19, 2013 /PRNewswire/ -- A team led by the Accelerated Cure Project for Multiple Sclerosis (ACP) has been approved for a funding award by the Patient-Centered Outcomes Research Institute (PCORI) to create the Multiple Sclerosis Patient-Powered Research Network (MS-PPRN). The MS-PPRN is one of 29 health data networks that were approved for a total of $93.5 million from PCORI to form the PCORnet: the National Patient-Centered Clinical Research Network, a new national resource that aims to boost the efficiency of health research.