iConquerMS can support many different types of studies depending on the nature and goals of your research program.
Studies using existing data/biosamples: Data previously collected from iConquerMS participants, such as data from the REAL MS study and EHRs that have been uploaded by participants, can be readily shared with researchers. The extracted DNA from a pilot collection of saliva samples is also available to researchers. Our consent processes governing the collection of data and biosamples from iConquerMS participants permit open sharing of these resources with any researcher without the need for additional consent.
Studies involving collection of new data/samples: If your research requires access to data and/or biosamples that have not already been collected, we will be happy to work with you to obtain these resources. We can implement new data collection mechanisms through the iConquerMS platform and/or arrange for collection of biosamples from participants. Data and samples can be collected either from the entire iConquerMS cohort or from specific subgroups, depending on your needs. For some studies, such as those involving the deployment of a new questionnaire on the iConquerMS.org portal, no additional consent will be needed. If an additional consent is needed for activities not covered by our main consent, we will work with you to put this in place.
Focus groups and patient councils: We can convene and facilitate focus groups and patient councils to gather perspectives and insights on a wide variety of topics. Whether you’re looking for a one-time conversation or a longer-term engagement, the diversity of our community, including both demographics and disease characteristics, allows us to recruit individuals matching your target audience.
Collaborative studies: We welcome collaborations with studies using other research networks or cohorts, other data collection platforms, and/or other research resources that already exist or are in development. We can also support multi-site clinical studies through the IConquerMS data collection and study management platform. If iConquerMS can enhance the statistical power of your study, provide access to new patient populations, supply valuable patient input to your efforts, and/or provide other types of support, we would be delighted to talk with you.